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A one in a million disease brings Belfast native's life to a standstill

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“It started in the car... Within minutes it went from my hips shaking to a full body spasm. My back was arched so bad I was stuck in between the front seats. My body had contorted in ways [my friend] had never seen before. That lasted six to seven minutes. “My body went limp for a minute or two and then the second spasm started, which lasted about 15 to 20 minutes... My body had contorted into another position ...

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